Sleep Apnea

A relative suggested I write about my experiences with obstructive sleep apnea. You can find more information at

http://www.webmd.com/sleep-disorders/sleep-apnea/sleep-apnea

I have always been a heavy snorer. This caused many personal problems with other people trying to sleep in my vicinity (camping trips, house guest, military barracks) and was a huge negative in my marriage.

My father died in his sleep at age 64. He was very fit. His Levi’s waistband was probably within one inch from his twenties. In later years, with better information, we now realize he showed all the signs of classic sleep apnea. He was a loud snorer. If you know someone who snores, who stops breathing for a minute or two, then snores again, they need to be checked. That minute or two is the only time they are completely asleep.

By 1995, my problem had grown so bad I fell asleep at red lights. I once fell asleep on a test drive; my customers woke me up. My general manager called me in. He pointed out we had HMO health coverage. He flat put it to me, get tested NOW or get fired.

Boring, but typical story, navigating Seattle Group Health’s rat maze, finally got me to the sleep order clinic. Much arguing led to me taking the equipment home, attaching the various leads, etc. and returning the equipment the next day (hint: Do shave the area the stickum adheres to).

Later the next day I start getting calls from the lab; they want to see me now. I’m busy and try to stall them. They finally call my boss. He explodes, tells me, “You damn mule, get your ass over there.”

At the lab, I meet the MD who is in charge. He starts off nice, showing me video screens with colored line and explains what they represent. He sees I’m not convinced so he smacked me with a 2x4 with the following.

“Mr. ______, I can tell you, with absolute certainty, that within six months you will have a major medical event. It may be today, next week, next month, but within six months it will happen. If you are lucky, it will kill you. Otherwise, you will be an invalid. You do have available to you, don’t you, constant nursing care for years to come? No, well you will require it.” Silence. (As a salesman I admired his closing skill) Finally, I said, “And my options would be?

Two days later I was using a CPAP. Other than one trip where I forgot it, one trip where I forgot the power cord, and a few nights when the power has been out, I’ve slept with a mask on my face and air blowing up my nose every since.

CPAPs and masks are a pain. You nose itches and sweats. Moving around the bed is restricted. You must make up your mind that you will use it, period, no excuses or rationalizations. CPAPs add new considerations for travel. Security check points, weight and space problems, and where is an outlet? I pack a 25’ drop cord to insure reaching an outlet. As an aside, I end up looking behind night stands and under beds for outlets. Rarely are those areas clean in the motels. Camping, or sleeping anywhere with out power, is a problem. Most CPAPs are set up to run on 12 volts. How far do you want to pack a battery? After one night, how do you recharge it?

For me, the biggest hassle has been dealing with the medical folks and, especially the medical appliances folks. Need a replacement anything? We want a prescription. Prescription? Need a new sleep study (at about $5,000 or so).

I love Craigslist, Google, and Ebay. All of my replacement CPAPs I’ve found on Craigslist. Those oh so secret adjustment manual the respiratory techs use are on Ebay. Now, I would happily pay the techs for their expertise if it didn’t come with the whole “need a prescription” deal. I can hear them saying now, “But we are required …………”. You are, I’m not. I’m a scofflaw.

The principal benefit to using the CPAP is, I’m still alive. Within the first six months, I lost over a 100 lbs. My blood pressure normalized (for me, 170/95 - bite me). My energy level zoomed. My sex drive became stronger; horny as a teenager (bit of a problem as I was divorced). According to those who had to deal with me, my personality went from “Impossible” to “Aggravating”.

I’ve never used things like humidifiers and supplemental oxygen. My nose won’t tolerate Nasal Pillows. I see ads for non CPAP solutions but have never perused them. What I have works for me.

Hope this can help anyone dealing with sleep problems, themselves or people in their lives. The machines have improved, and their size and weight are down. For some, surgery can help.

For those without health insurance, you may need to go the self help route. Google is your friend. Don’t fear it. My experience is the machines won’t produce enough pressure to harm your lungs. Crank it up till the mask starts fluttering then turn it down a notch or two.